About Me - Platypus on the Move

The clock was ticking...
Another countless hospital trip, another messy foray into the place between drug induced confusion and the real thing.  A therapist instructed  “Name as many animals as you can in the next 60 seconds…”  30 ticks of the second hand.  A mind blank … until lips blurted “Platypus!”


Why Platypus?
I honestly have no idea.  I didn't think I knew what one was and had never seen one. Since then, I’ve learned a few things about our friend the platypus.  You can here.


Platypus on the Move
I have a condition known as DRD, or Dopa-Responsive Dystonia. More on dystonia here, and the Dopa-Responsive type here.  After 33 years, and a long medical journey best understood by fellow chronic health condition veterans --- meet Cinderella.  Having a diagnosis of DRD is a bit like having a magic wand for disability.  In this case, the magic wand is a drug called levodopa that hides my disability from view and frees me from the cage of movement disorder.  Set free to explore and find a new path, I wonder what’s next.  

I look to the platypus that came to mind during a difficult hour.  Misunderstood. Defiant of convention.

I hope you’ll join me on this blog as I seek to celebrate the unique experience of moving and being a bit of a platypus. Sometimes elegant, sometimes awkward - the platypus inspires me to embrace moving differently. My goal is to celebrate moving in as many ways as I can, sharing my experience when I can be an advocate and benefiting some great organizations along the way.